Tick tock , wide awake, brain starts talking. Inspired, creative, words fill my head. A gift to elucidate, no point ignoring, but sleep , please just sleep. Time is running out, my most precious, wasted on my misses, & thoughts so useless. Dreaming again , could have been anything, rewind , downsize, have your time … Continue reading Time

What is a typical day like and what does it feel like now I am in my sixth year since being diagnosed with Young Onset Parkinson’s Disease? Well before I describe that I need to bring the blog up to date with the clinical progression. It is of course hard to catalogue in detail my … Continue reading A Typical Day (5 years post diagnosis)

A long time since my last post so there is a lot to update on my Parkinson's Disease experience. (Original post started in November 2019) It started with the Sun in Grenada in April , our trip to see where one half of our ancestry was from. When we booked the holiday, the story from … Continue reading 2 years in – The Sun and The Rainfall

I am not particularly drunk but to the world I must look like I have had a skinfull. I am walking through St Pancras station and shuffling like an old man instead of a man in his mid-forties. I am tired and I just want to collapse on my bed. My legs feel all tight … Continue reading A night out

Officially I have been diagnosed with Young Onset Parkinson's Disease for 14 months now. For the most part I can't really say much has changed. My gait and 'funny' walk is probably more noticeable , my physical strength is weaker, and I have had some apathy and examples, of what I would describe as out … Continue reading 1st year

For fear of the unknown, we mostly ignore the early signs which knock at our door. But in time we slow down to a beat not of the normal worlds rythm We then get told you are a person with Parkinson’s & the world stops in time. You freak , you process, you cry, you … Continue reading My world is different now

I realised the other day that I had passed the 6 month point post diagnosis & hadn’t captured how I am doing. So this is a short update. I am still taking Rasagiline and none of my symptoms have really altered. Tremor is almost non existent. Rigidity is the main symptom along with a gait … Continue reading 6 months ‘in’

Everything being equal I reckon I can make it perfectly well to 80, that would be very respectable. So I am setting that as my goal! I am going to do everything on my bucket list , I am going to learn to ski, we are going to Bora Bora for our 25th wedding anniversary, … Continue reading Ceteris Paribus

Chopsticks presented me with an amusing reminder of how Parkinson’s is going to become a significant part of my life this week. Here I was in the swanky new Nobu hotel in London for a work conference. It kicked off with a bento box lunch & miso soup, sat at a fairly tight for space … Continue reading Chopsticks

On November 20th 2017, I received my diagnosis of Young Onset Parkinson’s Disease, on November 22nd I was with my youngest brother watching my favourite band (I will let you guess or google who, if you’re interested) at The O2, London. Life had already moved on! I had a great time & a good few … Continue reading It’s just a Question of Time

I am conscious that I have announced to a lot of people about my diagnosis of Young Onset Parkinson's Disease, as I decided to be as open as possible from the start. Although this was an initial reaction that I now worry was a bit dramatic. It is natural of course but then I am conscious … Continue reading No tremor, no problem.

So I have a list of subjects planned out in my drafts folder & target dates to publish them. Some are just working titles , some are little triggers for me to come back to. I have been spending a bit of time trying to learn a bit more about managing this blog, which for … Continue reading New Horizons – part 1

This is a small update on my fourth visit to my Neurologist. It was a fairly short meeting, we quickly agreed that Rasagiline at 1mg per day was doing enough for now. He commented that I was very much more animated than previous meetings and I agreed, in that regard, I was doing well. I … Continue reading Waiting game

I am enjoying writing this blog although I have no idea how long I will keep it going; it will depend on the flow of ideas and usefulness in documenting my life with PD. I feel like I have more to say than I ever imagined when I started writing, I hope it is useful … Continue reading Dopamine please!

'Of Unknown cause' or 'Idiopathic', that's me! I have always wanted to be a mystery, not quite being definable, not quite a stereotype. However, in a strange way I have lived with a lesser sense of purpose, 'with an unknown cause', than I feel like I am living or starting to live now. I feel … Continue reading I am Idiopathic

A new normal is the phrase my wife gave to me in the few days after I was diagnosed......